Ed’s Story—Everyone with ALS Counts

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ED

Amyotrophic lateral sclerosis (ALS) is a fatal neurological disease that attacks the nerve cells. It first gained national attention as Lou Gehrig’s disease, named after the famous baseball player who was diagnosed with ALS in 1939. To date, the cause of ALS is unknown, and there is still no known cure. The disease strikes quickly, usually leading to death within 2–5 years of diagnosis. But every person with ALS has an individual story, and understanding these stories will help researchers ultimately piece together clues about this disease.

Ed Tessaro was diagnosed with ALS in 2009. As he learned to cope with this diagnosis, he reflects, “I’ve never considered myself a victim of the disease because I believe in my heart all of us have a wheelchair. In my case, it’s quite literal, but with everything that goes on in my life, I realize that every family has had a crisis.” One of the things that helps him and others with ALS is reaching out for community support and resources. “The ongoing struggle is to encourage newly diagnosed people to come in and talk about their condition. I want to help people learn about the National ALS Registry, clinical trials, and other resources that can provide support and hope.”

The National ALS Registry helps gather information from those who are living with this terrible disease. Researchers from all around the world can access the Registry data to help scientists learn more about what causes this disease. Everyone’s story is different, and everyone’s piece of the puzzle is essential. The Registry has found that almost 16,000 persons with ALS live in the United States, as of 2014.  It is important to include as many people as possible living with the disease to get the most accurate information. When patients join, it helps give researchers more information. This could lead to a better understanding of the causes of ALS, and could help offer a better future for people with ALS in all communities

Concludes Ed, “It’s tough, but maybe we can fling open a door or two in the next couple of years of research. I’m happy just to stall this thing and get all of us to another chapter in our life.”

Tweet this: “If you or someone you care about has ALS, please consider learning more about the National ALS Registry by visiting www.cdc.gov/ALS.”

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41 comments on “Ed’s Story—Everyone with ALS Counts”

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    I come from a Pacific Island nation called Papua New Guinea. My country shares borders with Indonesia, Australia and Solomon Islands..I usual search on Youtube any interesting documentaries. Whilst looking up youtube videos I came across a documentary on people who suffer ALS and their real treatment from http://www.multivitamincare.org. I for had never heard of this crippling and debilitating disease affecting a lot of Americans. It is very torturous to watch and hear patients who suffer. It is more like a combination of various diseases all put into one. Like a person who has suffered a stroke, plus someone suddenly becoming paralysed, cancer etc. but I also get to know understand that there has been successful cure to this disease from multivitamin care. It is too much for a patient to endure such as they slowly begin to pass away if the right medication is not taken .Having a positive mind is a powerful tool .My prayers goes out to ALS patients and their care givers.

    Hello everyone, my father was diagnosed with ALS September 2019 , since the prognosis he has lost the ability to speak , struggles to chew and swallow , his arm strength is minimal on his best days and he’s losing control of his balance and neck muscles .he has began to decline not only in health but mentally as well as he has given up the fight it seems , i couldn’t just watch my dad dying so i decided to go into the internet for a possible solution and luckily i saw a Facebook post singing the praises of a herbal medicine from Dr James that someone with ALS used and got cured and quickly contacted the email and order for the herbal medicine and since i started using the medicine my dad have recovered greatly . I am so happy and thanks to Dr James for reviving my dad. you can contact him for the ALS herbal medicine via his email ( drjamesherbalhome@gmail.com )and also add him on hangout or through his whatsapp +2348106467120..

    I was diagnosed of ALS disease (Lou Gehrig’s disease) in 2016 and have tried all i can to get cured but all to no avail, MY life was gradually coming to an end, until I saw a post in a health forum about a herbal doctor from West Africa called Dr santy who prepares herbal cure to cure ALS/ and all kind of diseases including HIV, Asthma, Cancer, Gonorrhea etc, at first I doubted if it was real but decided to give it a try, when I contact this herbal doctor via whatsapp +2348145243120  he prepared an ALS herbal cure for me and  gave me step by step instructions on how to apply it, After 5weeks of using this cure my life was back to normal, i regained strength in my bones and i was able to talk properly, all thanks to Dr santy. In case you’re feeling unhealthy you can contact him via  dr.santyjatto@gmail.com

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    Hello everyone, my father was diagnosed with ALS September 2019 , since the prognosis he has lost the ability to speak , struggles to chew and swallow , his arm strength is minimal on his best days and he’s losing control of his balance and neck muscles .he has began to decline not only in health but mentally as well as he has given up the fight it seems , i couldn’t just watch my dad dying so i decided to go into the internet for a possible solution and luckily i saw a Facebook post singing the praises of a herbal medicine from Dr SANTY that someone with ALS used and got cured and quickly contacted the email and order for the herbal medicine and since i started using the medicine my dad have recovered greatly . I am so happy and thanks to Dr SANTY for reviving my dad. you can contact him for the ALS herbal medicine via his email dr.santyjatto@gmail.com whtasapp +2348145243120

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    Greatest thanks to Dr Oyagu for his herbal drugs that he prepared for me and when I start using it in just 2weeks I was completely cured and that ended my HERPES SIMPLEX 1&2 DISEASE i am so happy and grateful to Dr Oyagu . after reading about him on a testimony of Jason Cash on a blogger. I knew suddenly Dr Oyagu was the right Doctor to cure my HERPES SIMPLEX 1&2 DISEASE. I discuss with Dr Oyagu and he prepared a herbal medicine for me and when it got sent to me in south Korean . I used the herbal medicine and 2weeks and i went to check up again. after 15years of suffering from HERPES SIMPLEX 1&2 at last i am smiling once again. Dr Oyagu also has remedy to others disease like COLD SORES,HIV/AIDS,DIABETES.CANCER,HIGH BLOOD PRESSURE AND MANY MORE. I oblige everyone to contact this powerful herbalist Dr Oyagu and be free from your suffering. contact his WhatsApp line: +2348101755322 or visit his Website https://oyaguspellcaster.wixsite.com/oyaguherbalhome Email:Oyaguherbalhome@gmail.com

    When i first started on the ww w .multivitamincare .org ALS/MND treatment, I was completely immobile due to my long term ALS condition. I was taking high doses of prednisone and anti-inflammatory medicines, which caused many bad side effects. After i started on the ALS herbal therapy, my condition greatly improved. Its been 13 months since treatment, i can never be thankful enough”

    My brother David has been diagnosed with ALS for a little more than a year. He showed signs of it for close to three years and no Doctor was able to figure out what was wrong, until my sister whom he had been living with kept trying to bring him to each doctor —- finally found a doctor who recognised almost immediately that he had ALS. He has been taking medication that was made available to him only through a medical grant funding from those who have donated to the continuing research for a possible cure. He has slowed down in the progression, but without side effects. My hopes and prayers are that, you can also contact the Doctor for possible cure if you have ALS or any relative suffering for same disease here is their email medicalhealthcarelab@gmail.com

    I was diagnosed with multiple sclerosis in June 2016, I am in a wheelchair and have a lot of spasms. My wife was taking care of me and doing her best to find a solution to save my life Four months ago my wife came to see me and told me that she found out about a man named Dr. Peter Wise and that Dr. said he could help me of my situation, I was glad to hear that and allowed him to give it a try. three days later he came up with a herbal formula and said it was from Dr. Peter Wise, I was very happy and I started the medication and in 3 weeks I was able to walk without support and my spasms stopped and now I don’t feel any symptoms of multiple sclerosis. Thank you Dr. Peter Wise for this great healing. You can contact Dr. Peter Wise for your healing via peterwiseherbalcenter at Gmail. com or message him on WhatsApp plus 2349059610643 thanks kind regards Gabriel.

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    I’m so happy my Dad got cured from ALS which almost make him disable in life,and he lose speech and swallowing ability with other health issues,on till i found someone testify of his Dad who got cured from ALS with natural herbal treatment from Dr Oselumen,i also reach the Dr online through his email droselumen@gmail.com  and i inquire his ALS natural herbal  product,after 3 weeks of using the natural herbal treatment my Daddy got cure permanently, please help me in thanking this Dr for good work by healing ALS patient, they are not here to cheat on sick people but ready to help the sick, my Dad get himself back to feet after 3 weeks of taking the medication, here is the Dr. whatsapp num  +2348054265852  or email  droselumen@ gmail.com DOCTOR OSELUMEN CAN AS WELL CURE THE FOLLOWING DISEASE

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    I’ve been Feeling weak and always feeling sleepy for some time which I went for a test and I was told i am diagnosed with Amyotrophic lateral sclerosis Disease (ALS DISEASE) ever since then I’ve followed a wide variety of medical treatments, I have even combined with different pills and antibiotics without clear results. My health was deteriorating more and more. But thanks to a Herbal Doctor’s herbs method that I found on the internet which has saved so many lives and also helped me to achieve the results i wanted, i knew from the beginning that this could help me after much learning and the cure Dr sent to me and which I began to follow the method from the Herbal Doctor called (Dr Aziba) and the results were wonderful: I recommend you to get in contact with him via
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    I have been battling this Herpes disease for almost 3 year now….I tried all possible means to get cure from my Herpes Disease but all to me in vain until i saw a post in a health forum about a herbal doctor  DR ISIRAMEN who prepare herbal medicine to cure all kind of diseases including Herpes Disease, at first i doubted if it was real but decided to give it a try…when i contact DR ISIRAMEN via his email drisiramenherbalhome05@gmail.com write him and reply me explain how the process work so after ordering for the medicine I got it within 3/4 working days through DHL Delivery and I took it according to the way DR ISIRAMEN instructed, I was so happy after 2 week I took the medicine there was very big change in my health when I was done with the process I go for test, I found out I am negative…Herpes patients should also get in touch with this herbalist DR ISIRAMEN to get rid of these Herpes Virus forever his whatsapp number +2348054753640 or visit his website https://drisiramenherbalho.wixsite.com/drisiramen

    hello everyone here. I want to share this testimony of how Dr SALATO helped me,  I had  a  small penis and a weak erection problem. I couldn’t make love to my wife for 5 minute and my penis was just too small. A full grown man like me has a 3 inches penis and to worsen it I don’t last in bed. I cannot even last 5 minutes it hello everyone here. I want to share this testimony of how Dr SALATO helped me,  I was having  a  small penis and a weak erection problem. I couldn’t make love to my wife for 5 minute and my penis was just too small. A full grown man like me has a 3 inches penis and to worsen it i don’t last in bed i cannot even last 5 minutes it was really a thing of shame to me. My wife was really tired of me because i can not satisfy her,,i was always thinking and searching for a solutions everywhere and i came across a testimony of Mr LUCKY   testifying that DR SALATO helped him to enlarge his penis,i decided to give him a try and to my greatest surprise in less than one week of using his herbal cream, my penis grow to 7 inches i couldn’t believe my eyes and as i speak now my penis is now 11.5 inches and i do not have weak erection again. I can make love to my wife longer in bed. And my marriage is now stable,my wife now enjoy me very well in bed. You can contact him via {drsalatosolutiontemple@gmail.comwebsite https://drsalatosolutionte0.wixsite.com/drsalato or call +2348103629945 Thanks for  Enlarging my penis sir, you indeed save my marriage…I am really grateful sir.

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    I’m really happy that i have been cured from HSV1&2 DISEASE with the herbal medicine of DR.MOMOH have been suffering from this disease for a long time now without solution until i came across the email of this doctor who have cure so many people with his herbal medicine, i also choose to give him a chance to help me, he told me what to do and i kindly did it, and he gave me his herbal medicine and direct me on how to use it, i also follow his instructions for use and he ask me to go for a check up after 3 months which i did, to my greatest surprise my result came out as negative, i am really happy that there is someone like this doctor who is ready to help anytime any day. To all the readers and viewers that is doubting this testimony stop doubting it and contact this doctor if you have any disease and see if he will not actually help you. I know that there are some people out there who are really suffering and hurting their family just because of these diseases. you can get to him through email: DRMOMOHHEALERTEMPLE@EMAIL.COM or WhatsApp him +2348166979481.

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    Am really grateful and thankful for what Dr Oliver has done for me and my family. i have be suffering from HERPES for good three years with no solution, the diseases almost took my life and because was unable to work and I was also loosing lots of money for medication, but one faithful day when I went online, I met lots of testimonies about this great man so I decided to give it a try and to God be the glory he did it. If you need his help or you also want to get cured just the way I got mine, just email him ( droliverherbalcenter@gmail.com ) or Whats App:+2348075376153 and get your healing.

    Am testifying of the miraculous work of a great traditional doctor called  Dr Shaibu Abacha. ..I have been suffering from herpes since last 2 years with my Husband but today I am happy that am cure from it with the herbal medicine made by  Dr Shaibu Abacha the great healer, I was browsing the Internet searching for help when I came across a testimony shared by someone on how  Dr Shaibu Abacha cure her from Herpes Disease. I quickly contacted him to get the cure and today i am now free from the Virus. Contact Dr Shaibu  Abacha for all kinds of ailment.
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    this is real take it serious, who will believe that a herb can cure ten
    years HIV in my body, i never believe that this will work i have spend a
    lot when getting drugs from the hospital to keep me healthy, what i was
    waiting for is death because i was broke, one day i hard about this great
    man who is well know of HIV and cancer cure, i decided to email him,
    unknowingly to me that this will be the end of the HIV aids in my body, he
    prepare the herb for me, and give me instruction on how to take it, at the
    end of the two week, he told me to go to the hospital for a check up, and i
    went, surprisingly after the test the doctor confirm me negative, i thought
    it was a joke, i went to other hospital was also negative, then i took my
    friend who was also HIV positive to the Dr voodoo after the treatment she
    was also confirm negative . He also have the herb to cure cancer please i
    want every one with this virus to be free, that is why am dropping his
    email address, voodoospelltemple66@gmail.com i want you to email him he
    is a great man. the government is also interested in this Dr voodoo
    thank you for saving my life, and I promise I will always testify
    for your good work you can also add him on whatsApp
    +2348140120719

    Hello viewers around the Globe, I was despondent because i had a very small penis, about 2.5 inches soft and 4 inches hard not nice enough to satisfy a woman, i have been in so many relationship, but cut off because of my situation, i have used so many product which doctors prescribe for me, but none could offer me the help i searched for. i saw some few comments on the internet about this specialist called Dr odoma and decided to contact him on his mobile no i saw on the internet, I decided to give his herbal product a try. he gave me some comforting words with his herbal pills for Penis Enlargement, Within 1 week of it, i began to feel the enlargement of my penis, ” and now it just 2 weeks of using his products my penis is about 10 inches longer, and i had to settle out with my Ex girlfriend Jane, i was surprised when she said that she is satisfied with my sex and i have got a large penis. Am so happy, thanks to Dr odoma  I also learn that Dr odoma also help with Breast Enlargement Hips and Bums Enlargement, If you are in any situation with a little Penis, weak ejaculation, small breast_hips_bums do get to Dr odoma  contact him now on his mobile no, or add him up on whatsApp (+2348100649947) email him drodomasolutionhome20@gmail.com

    Good day everyone I’m here to give my testimony about a herbalist doctor who helped me. I was infected with HERPES SIMPLEX VIRUS in 4years ago I went to many hospitals to heal myself but there was no solution, so I was thinking how I can get a solution so that my body can be well. One day I was in the river thinking about where I can go to get a solution. so a lady walked towards me telling me why I’m so sad and I open everything by telling her my problem, she told me she could help me, she introduced me to a doctor who uses herbal medicines to cure the SIMPLEX HERPES VIRUS and everything I had to do and also gave me instructions to take, which I followed correctly. Before I knew what was happening after two weeks, the SIMPLEX HERPES VIRUS that was in my body disappeared. therefore, if you also have a broken heart and need help, you can also send an WhatsApp number: +2348164816038 you can still Contact him on email dromohanherbalmedicine @gmail.com will have a testimony … Good luck!DR Omohan He also have the herb to cure:(1) ALS,(2) DIABETES,(3) HIV&AIDS,(4) URINARY TRACT INFECTION,(5) CANCER,(6) HERPES(7) COPD(8) HPV.   or https://dromohanherbalmedicine.webs.com/  

    HOW I WON LOTTERY THROUGH DR HARRY HELP whatsapp +2349036417079 website   link https://drharryherbaltempl.wixsite.com/solutiontemple   

    Imagine becoming vastly wealthy overnight. Being a winner of a multi-million dollar lottery certainly will be a life-changing event for almost every single lottery winner. My name is Courtney Kol  from Chicopee, Massachusetts, the famous PowerBall lottery winner of $758 million (£591m) in 2018. I know many people would wonder how I had won the lottery. Would you believe me if i told you that i did it with spell casting? I met this famous spell caster known as Doctor Harry and he was the one who did it for me. As shocking as it was to me my famous comment to the press was “ I’m going to go and hide in my bed.” Never did I believed that Doctor Harry actually made me wealthy overnight. (1)If you want your ex back.
    {2}If you want to be very successful
    (3)If you are searching for a job
    (4)You want to be promoted in your office.
    (5)You want women/men to run after you.
    (6)If you want a child.
    (7)You want to be rich.
    (8)you want to get Marriage Spells
    (9)Remove Sickness from your body Spells
    (10)Business spell
    (11)Lottery winning numbers
    (12)Bring Back Lost Love(13) penis enlargement 
    If you want to have your chance of winning and becoming very wealthy just like me, contact Doctor harry at drharrysolution@gmail.com website link https://drharryherbaltempl.wixsite.com/solutiontemple  or whatsapp him at +2349036417079  and you will be lucky. Thanks for Reading and hope to see you at the top  

    My husband was diagnosed with ALS in the summer of 2019; His initial symptoms were quite noticeable. He first experienced weakness in his right arm and his speech and swallowing abilities were profoundly affected. We all did our best to seek help for this disease, no medications they prescribed worked ,we were all scared we might lose him due to his condition, as he had been his brother’s caregiver a few years earlier for the same disease before he passed. doctor recommend natural treatment from Tree of Life clinic for his ALS we have no choice to give a try on natural organic treatment ,this herbal cure has effectively reverse my husband condition ,losing his balance which led to stumbling and falling stop after the completing the herbal supplement which include his weakness in his right arm and his speech, home remedies from www  treeoflifehealthclinics com is the best  they save lives.

    HOW I WON LOTTERY THROUGH DR HARRY HELP whatsapp +2349036417079 Imagine becoming vastly wealthy overnight. Being a winner of a multi-million dollar lottery certainly will be a life-changing event for almost every single lottery winner. My name is Courtney Kol  from Chicopee, Massachusetts, the famous PowerBall lottery winner of $758 million (£591m) in 2018. I know many people would wonder how I had won the lottery. Would you believe me if i told you that i did it with spell casting? I met this famous spell caster known as Doctor Harry and he was the one who did it for me. As shocking as it was to me my famous comment to the press was “ I’m going to go and hide in my bed.” Never did I believed that Doctor Harry actually made me wealthy overnight. (1)If you want your ex back.{2}If you want to be very successful(3)If you are searching for a job(4)You want to be promoted in your office.(5)You want women/men to run after you.(6)If you want a child.(7)You want to be rich.(8)you want to get Marriage Spells(9)Remove Sickness from your body Spells(10)Business spell(11)Lottery winning numbers(12)Bring Back Lost Love(13) penis enlargement If you want to have your chance of winning and becoming very wealthy just like me, contact Doctor harry at drharrysolution@gmail.com or whatsapp him at +2349036417079  and you will be lucky. Thanks for Reading and hope to see you at the top  

    Doctor Safari is the only person with the cure to herpes virus 1&2 thank God to this powerful herbal cure at last i can also testify online am finally free after couple of the herbal capsule he sent oh i can say enough .kudos to Doctor Safari My Name is Mrs kathleen,Am Here To Testify About The Great Work Of Doctor Safari Herbal cure!Never Believed I Could Get My Life Back Until I Come Accross This Powerful Herbal Cure Through The Google Search I Cant Say Enough After Two Weeks Of The DOSE Now Am Restored.Went for Several Test Was Confirmed Negative All Through No Re Occurance finally Am Free Forever.I Use This Medium To Say A Big Thank You To Doctor Safari Herbal Cure for helping me Get my Life back From the Generational Spell that has been in my family at last i’m free and happy again,If any one is Looking for a permanent and secure herbal cure to Permanently remove herpes HSV totally from the body and getting a better life back out from all kinds of spell That has been troubling you and your family,Get your Husband back,Promotion Problem,All kinds of sexually transmitted diseases, look no more contact doctor safari for a permanent and lasting solution to totally clear your system and get restored 100% Guarantee.
    Email:safarispellherbalhome@gmail.com,Phone:(215) 866-4034,Contact Doctor Safari home he is a traditional specialist,He has helped many people get cure from various diseases through the help of the powerful herb.

    I used to suffer from HERPES GENITAL for about 3 years so I can relate to people who have the cure. No medications or treatments ever really did anything for me (i tried them all no one worked. but I was actually able to completely cure HERPES naturally after countless hours of online research. What worked for me is as follows: I saw Dr Oje Abacha Information online that he normally cure and treat disease and infirmities with his Herbal Medicine, I never really believed the people who were recommending him thou i saw on blog about 6 people where also testifying on how they were cured by Dr Oje Abachaand stillEllen recommend Dr Oje Abacha who uses herbal medication to cure HERPES GENITAL VIRUS and gave me his email, so i mail him He told me all the things I need to do and also give me instructions to take, which I Followed properly. Before I knew what is happening after two weeks the Herpes GENITAL VIRUS that were in my body got vanished . so if you are also heart broken and also need a help, you can also email him:oje.herbalsolutioncentre@gmail.com . or through his WhatsApp +2348159734766
     If you are infected with any disease like HIV,AIDS,CANCER, LOVE SPELL, HERPES.PVC, or any other disease you can also be happy like me by contacting…..Name: Dr Oje Abacha

    A GREAT SPELL CASTER (DR. EKPOMA ) THAT HELP
    ME GET MY EX HUSBAND BACK, I AM SO HAPPY
    My name is  SUSAN  from the USA .I am here to
    give testimony on how I got my husband back.
    My husband left me for no reason 3 years ago.
    He moved in with another woman, I felt like
    killing myself, my life became very bitter and
    sorrowful. Then 1 day, a friend of mine told me
    about a great spell caster that is very good and,
    He said he gave him some lucky numbers that he
    played in a lottery and he won. I didn’t believe it
    because I’ve worked with so many of them and it
    didn’t work. He begged me further so I decided
    to try this great spell caster called DR EKPOMA . I
    still didn’t believe it. I used the spell he gave me
    and the next day I received a call from my
    darling husband Thomas last month. He
    apologized and came back to me. He even gave
    me 10,000USD as a means of compensating me.
    I’m very happy now. please i will advise you to contact him
    now and see for yourself his Email is via____
    drekpoma77temple@gmail.com or whatsapp him
    through the following contact on +2348139206346

    Dr.EKPOMA  also cures:
    1. HEPATITIS A,B,C
    2. HERPES 1/2
    3.DIABETES
    4.STROKE.
    5.HIV/AIDS HERBAL CURE, STDS and STI
    6. MARRIAGE COUNSELLING
    7.LOVE SPELL CASTING
    8.JOB PROMOTION SPELLS
    9.MARITAL PROBLEM
    10.MAGIC MONEY SPELLS  

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Page last reviewed: August 30, 2018
Page last updated: August 30, 2018