Emergency Preparedness Tips for Parents of Children with Special Healthcare NeedsPosted on by
April is National Autism Awareness Month. It is also a time of year when people must prepare for severe weather.
April, May, and June are peak months for tornadoes in many states. The Atlantic hurricane season officially starts on June 1.
Emergencies come in all sizes and affect people in different ways. All emergencies require some amount of personal health preparedness beforehand to stay safe and healthy during and afterward. At a minimum that means stocking up on emergency supplies, such as food, water, prescriptions, and backup power sources.
For Jennifer Silliman and her family, it means that and more. Her 11-year-old daughter, Allyson, has autism. They live in South Florida, where they’ve experienced over a dozen hurricanes and tropical storms since moving there in 2003.
Preparing for emergencies can be challenging for families caring for a child with autism or other disability. But a little preparation now can make a big difference when an emergency happens.
Planning is paramount
All children have unique needs during an emergency. Preparedness planning for children with special healthcare needs is often more complicated because they may have:
- A hard time moving from one place to another,
- Urgent or constant medical needs,
- Difficulty communicating, and
- Trouble with transitioning to different situations.
A disaster can present some or all these difficulties at once.
Having a plan for how to stay healthy, informed, connected, and calm is important. If there is a child with special healthcare needs in your family, your emergency action plan should include an emergency care plan.
An emergency care plan is important paperwork that you and your child’s doctor can write together. It’s used to communicate information about your child to caregivers. During an emergency, this could include teachers, grandparents, friends, and neighbors.
“My biggest fear is that Allyson would get separated from me and my husband during an emergency,” says Jennifer. “Allyson is nonverbal, so she cannot tell people where she lives, what her phone number is, or how to contact her parents.”
Because of her communication challenges, Allyson wears a bracelet that has her full name and her parents’ names and contact information. “She wears it all the time. She never takes it off,” says Jennifer.
Nothing worthwhile is easy
When there is a hurricane in the forecast, Jennifer’s family makes sure they have the basics, such as water, batteries, and flashlights. But they must also prepare for Allyson’s personal needs.
Personal needs include the everyday items that she could not do without in an emergency. Allyson’s needs include a weighted blanket and a white noise machine to help her sleep and several favorite foods.
“My daughter has six foods that she eats every day, including honeydew melon and French toast sticks. Almost every food she eats must be refrigerated or cooked in a microwave and this can present challenges if the power goes out during a hurricane,” says Jennifer.
Some of Allyson’s other must-haves are noise-canceling headphones and a tablet preloaded with her favorite television shows and music. Then there’s the backup battery power that’s needed to run these things. All would be invaluable if her family ever had to evacuate to a shelter.
Strive for peace of mind
Preparing for an emergency can be stressful for all families, especially those with children with special healthcare needs. Having—and practicing—an emergency action plan can help families respond with confidence to the real thing.
Communication is key. It’s important for all families to talk to their children about what is happening in a way that they can understand. Keep it simple and consider the child’s age and type of disability.
Even though Jennifer’s daughter, Allyson, does not have a lot of expressive language, she does understand when others talk to her. “We want to be respectful of Allyson, so we tell her ‘Hey, we might need to pack up and go,’ or ‘It might get really loud tonight, and the house might get dark.’ I think telling children what’s going on puts them at ease.”
After a disaster, parents, caregivers, and healthcare providers must know how to help children cope with their different and strong emotions. Some children react right away; others may show signs of difficulty much later. Coping with a disaster can be particularly difficult for children with disabilities.
Visit the Prepare Your Health website for more information on how to prepare for emergencies.
- Children and Youth with Special Healthcare Needs in Emergencies
- Children in Disasters Real Stories: Children with Special Needs
- Ready Wrigley: Coping After a Disaster
- Preparing Children with Special Healthcare Needs for an Emergency
- Emergency Preparedness for Families with Special Needs
- Prepare Your Children
Thanks in advance for your questions and comments on this Public Health Matters post. Please note that the CDC does not give personal medical advice. If you are concerned you have a disease or condition, talk to your doctor.
Have a question for CDC? CDC-INFO (http://www.cdc.gov/cdc-info/index.html) offers live agents by phone and email to help you find the latest, reliable, and science-based health information on more than 750 health topics.
4 comments on “Emergency Preparedness Tips for Parents of Children with Special Healthcare Needs”
Comments listed below are posted by individuals not associated with CDC, unless otherwise stated. These comments do not represent the official views of CDC, and CDC does not guarantee that any information posted by individuals on this site is correct, and disclaims any liability for any loss or damage resulting from reliance on any such information. Read more about our comment policy ».
I can relate to this post very much. I lived in Charleston, South Carolina during a few hurricanes. I also now reside in Texas where a snowstorm swept through, and we just recently experienced tornados and flooding. This post is relatable as I have a six-year-old son who has severe food allergies to several different foods. We carry Epipens and Benadryl everywhere. During a few of the natural disasters, we became limited as to what food was available for us to purchase. This was very difficult as we could not find foods that were safe for our son to consume. No bread, dairy free milks, snacks.. nothing. We ended up connecting with different people who were able to spare us some safe foods to last us during our shelter time. We now have prepared kits that are in whatever car we are driving and one in the house. They have an epipen, box of children’s benadryl and nonperishable snacks. While this situation may not work out well for all conditions, it has allowed us to feel a little less anxious about whatever disaster we may encounter.
Thanks for you very useful message and information post
This article is a great resource to medical professionals that, in the event of a natural occurrence, know how to effectively treat not just the child but the family as a unit. The prevalence of special health care needs in children increases with their age. With 20% of households having children with special health care needs, this article sheds light on how what can have a small impact on some children/families can have a huge impact on others.
a hard time moving, difficulty communicating, and trouble transitioning are problems almost all adults experience in a disaster or emergency. So you have to remind them survival is most important at the moment. Do emergency shelters still have emotional counselors at each center?
Post a Comment